Alzheimer’s Disease: Awareness, Understanding, Support and Care
The mission of our Philanthropic Initiative for Alzheimer’s Disease is to promote awareness regarding the many facets of this disease as well as to help those individuals afflicted by this terrifying disease and those that love and care for them. Of the top 10 causes of death in America, Alzheimer’s is the only disease without any effective treatment or cure. The committee has gathered educational information from organizations, such as the Alzheimer’s Association, the Bright Focus Foundation, and the Women’s Alzheimer’s Movement founded by Maria Shriver, as well as collected materials from books, videos, and websites. It is our goal that all of this information will assist our community in caring for their loved ones with Alzheimer’s Disease, who cannot advocate for themselves. We hope a cure will soon be found for this tragic disease.
November is recognized across the United States as National Alzheimer's Disease Awareness Month. The National Philoptochos Society encourages all local Chapters to provide educational programs within their parishes to raise awareness of Alzheimer's Disease. Recommendations for programs include hosting guest speakers, sponsoring a health fair, and distributing information to the community.
Awareness, Understanding, Support and Care
TED Talks: Samuel Cohen “Alzheimer’s Is Not Normal Aging -- and We Can Cure It”
TED Talks: Lisa Genova “What You Can Do To Prevent Alzheimer’s”
- Crucial Brain Health Tips From 15 Leading Experts
- 12 Books to Get Smart on Brain Health
- Early Alzheimer’s Prevention: 4 Things You Should Do Now
- Maria Shriver Reports on Game-Changing Brain Fitness Program
- Maria Shriver Reports on Program That Reverses Cognitive Decline
- Essential Vitamins & Supplements for Good Brain Health
- 8 Steps To Reverse Memory Loss
- The 6 Key Things to Do to Outsmart Alzheimer’s
- The Alzheimer’s Diet
Additional articles on Prevention can be found at the following link:
Helpful Resources for People Living with Alzheimer's Disease
This page provides resources and information about products, services, and other support for people with Alzheimer's disease and their families can be found on this website: https://www.brightfocus.org/alzheimers/organizations
On this page, you'll find resources and information regarding:
- Professional Services
- Legal Assistance
- Financial Assistance
- Federal Government Programs and Services
- Prescription Assistance Programs
- Safety and Home Healthcare
- Caregiving and Caregiver Support
- Long-Term Care and Living Options
- Hospice Care
Resources for Caregivers
- Why You Should Visit Loved Ones With Alzheimer’s
- What Caregivers Really Want Their Friends to Know
- The 8 Most Important Things to Do When Planning for Elder Care
- 16 Essential Websites for Every Caregiver
- 5 Steps to Help Counter a Common Caregiving Side Effect: Guilt
- 5 Lessons I’ve Learned as a Primary Caregiver
- What Alzheimer’s Disease Feels Like
- 5 Things You Should Never Say to a Person With Alzheimer’s
- Interacting With People With Dementia – What You Should Know
- Taking Care of the Caretaker
- Help for Caregivers at the End of Their Rope
Additional articles on Caregiving and helping Caregivers can be found at the following link:
The 36-Hour Day: A Family Guide to Caring for People Who Have Alzheimer Disease, Related Dementias, and Memory Loss
by Nancy L. Mace and Peter V. Rabins
This fifth edition is a comprehensive guide to caring for people who have Alzheimer's disease. This new edition provides the latest information on the causes of dementia, behavioral issues, resources and support groups. It also discusses the need for caregivers to find respite care and offers guidance for family members seeking living arrangements for their loved one when home care is no longer an option. Finally, the book offers advice regarding the financial and legal matters family must address. This book also includes information about problems that arise in daily care, handling an impaired person's suspicion and anger, how to get support, and the financial and legal matters you must address. Written by experienced authorities in the field, it is an all-time best seller in its field.
Flying to the Moon: A Mother and Daughter’s Journey Through Alzheimer’s
by Jennifer Blackmore
Flying to the Moon is the personal story of a young woman’s journey with her beloved mother through Alzheimer’s disease. The book describes the effects that this debilitating disease had on both the victim and her loved one. Jennifer shares her emotions as she realizes that her mother is not the woman she once admired. Alzheimer’s disease took away Jennifer’s mother’s life, but through the struggle, gave both Jennifer and her mother a newfound affection for each other. The book touches on universal themes of loss, survival and empowerment.
Poignant, honest and inspiring, Flying to the Moon offers hope to everyone affected in some way by this tragic condition.
by Lisa Genova
In this extraordinary New York Times bestselling novel, an accomplished, 50 year old professor diagnosed with Early-Onset Alzheimer’s disease learns that her worth is comprised of more than her ability to remember. Writing in the third person, Genova gets inside of Alice’s head as she goes about her day, while also describing non-afflicted peoples’ reaction to her increasingly bizarre and unsettling behavior. Through this technique, the reader gets an inside view of the duality of the disease.
Now a major motion picture from Sony Pictures Classics starring Julianne Moore, Alec Baldwin, Kate Bosworth and Kristen Stewart
* Any medical or health care or other education information on this page is intended to provide information and is not intended to provide medical consultation regarding the diagnosis, management or treatment of any patient or illness, nor is it intended as a substitute for the professional judgment of a physician or other health care provider.